Many for the Rare
07.09.2024.

LITTLE LAKE, JARUN

www.utrke.com

Funds from the registration fee were allocated to the STRONG AS JACOB ASSOCIATION.

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people in Croatia suffer from rare diseases
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different rare diseases exist around the world
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people in Croatia suffer from rare diseases

The Strong as Jakov association was founded on February 6, 2011, in Karlovac to help children suffering from malignant diseases and their families.

The inspiration for the foundation of the association was provided by Jakov Rubido, a thirteen-year-old who fought against leukemia and epilepsy with exceptional strength of spirit.

Funds from the registration fee will contribute to further providing support to those most in need through the activities of the association.

Many for the Rare

The initiative “Many for the Rare” represents something that no one in Croatia has undertaken yet. As a strong impetus for the healthcare and pharmaceutical sectors, this project has the potential to significantly contribute to positioning Croatia as a center of excellence in clinical trials in this part of Europe.

The project will bring numerous benefits, including GDP growth, strengthening scientific research, and improving the healthcare system by reducing waiting lists.

It will also increase the number of clinical trials, create new jobs, and attract international investors.

In addition to all these advantages, “Many for Rare” symbolizes hope and change, providing patients and their families with a new opportunity for a better life. This initiative has the potential to become a beacon of hope, demonstrating the power of community and showing how big hearts can influence the creation of a better tomorrow.

The Many for the Rare is organized by Proqlea together with the Croatian Association for Rare Diseases. So far, they have organized three panel discussions with representatives of the professional community and associations, and now we want to expand this topic to the wider public.

Raising awareness about rare, incurable, and malignant diseases.

Emphasizing the importance of access to the latest therapies.

Providing support to patients and their families facing difficult diagnoses

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Join us 07.09.2024.

The program is led by Aleksandra Numanović & Sanja Parmać
  • 09:00 h – Beach volleyball tournament for volleyball clubs in Zagreb with the awarding of cups and medals.
  • 16:30 h – Race for children
    A short course (500m) adapted for children of all ages. Each child who participates receives a starting package and a medal as a sign of gratitude and support.
  • 17:00 h – Professional 5km race
    Our ambassador will run for 24 hours and will start his race the day before. This will motivate all passers-by to join the event.
    For the race, it is necessary to pay the entry fee on the portal and each runner will receive a starting package and a timer. This will help us to display the results transparently and award prizes according to the gender and age of the competitors.

    The entry fee will cover the costs of the organization, and any surplus will be donated to one of the guest associations at the event.

  • 17:15 h – Race for retirees
    15 minutes after the start of the professional race, a 500m race for retirees begins at the same start, who also receive a starting package and a medal.
  • 19:00 h – Concert by Croatian musicians
    Bring your friends and family and enjoy music under the starry sky.

Golden donors

Silver donors

Bronze donors

BE ONE OF
the Many for the Rare

SUPPORT THE INITIATIVE
to raise awareness about the importance of clinical trials for rare diseases and the development of new drugs and therapies for the purpose of cure.

LITTLE LAKE
Jarun Zagreb

Saturday, 07.09.2024.
09:00 do 22:00 h

dobrotajelijek@proqlea.com