Many for the Rare
07.09.2024.
MALO JEZERO, JARUN
www.utrke.com
The funds from the registration fees have been allocated to the association Jak kao Jakov
First event - The beginning of a new tradition
On September 7, 2024, the first Many for the Rare event was held, bringing the community together to raise awareness about rare diseases, the challenges faced by those affected, and the importance of clinical trials in developing new therapies.
It was organized following three panel discussions, with the ultimate goal of improving the quality of life for patients and their families.
The Many for the Rare event rounded off and crowned the first year of the Kindness is medicine initiative, expanding engagement from exclusively professional audiences to the general public, who participated with great interest and complemented the previous activities in the best possible way.
Raising awareness about rare, incurable, and malignant diseases.
Emphasizing the importance of access to the latest therapies.
Providing support to patients and their families facing difficult diagnoses
The Jak kao Jakov Association was founded on February 6, 2011, in Karlovac to help children suffering from malignant diseases and their families.
The inspiration for founding the association came from Jakov Rubido, a thirteen-year-old who fought against leukemia and epilepsy with exceptional strength of spirit.
The funds from the registration fees will contribute to further supporting those in need through the activities of the association.
Report from the Many for the Rare 2024. event
The event brought together numerous participants and prominent sponsors, laying the foundation for further raising awareness about rare diseases. The event was organized by Proqlea and the Croatian Alliance for Rare Diseases.
Visitors were welcomed with:
- Sports activities: A beach volleyball tournament for 29 Zagreb clubs and races in three categories: for children, retirees, and professional runners.
- Ambassador run: Marko Kos ran continuously for 12 hours before the main race, covering a total of 72 kilometers while pushing children with disabilities in wheelchairs.
- Presentation of associations: Showcasing associations that help those suffering from rare and malignant diseases.
- Public health actions: Visitors had the opportunity to participate in blood pressure, sugar, and cholesterol measurements and receive nutritional advice.
- Cultural and entertainment program: Performances by artists such as Zaprešić Boys, Chickstick Band, Sanja Parmać, and the group Vatra, while children enjoyed workshops, an English-language play, and various games.
- Humanitarian aspect: From the race registration fees, €3050.32 was collected and donated to the Jak kao Jakov association.
We sincerely thank the donors without whom we would not have been able to hold the event:
- GOLDEN DONORS: Catering Dobra kuhinja, Labsense
- SILVER DONORS: Zagreb plakat, Klemm security, Partner electric, Row spirit ba Martin Sinković
- BRONZE DONORS: Ferrostil mont, Eko papir, Altagena
A heartfelt THANK YOU to all donors:
Agristar d.o.o., ATLANTIC GRUPA d.d., Badel 1862 d.d., NATURALIS d.o.o., Crystal vision, Dukat mliječna industrija d.d., Jamnica plus d.o.o., KOVA d.o.o., Labsense d.o.o., Opća privatna gimnazija, Pyrus d.o.o., SALVUS D.O.O., Tekka restoran, Terme sv. Martin, West end škola stranih jezika, Studio Pozornica, Labud d.o.o., IN TIME d.o.o., Karas Creates, Brajko prijevoz, Stanić beverages d.o.o, OŠ Dominik Savio, Vina Belje, Heineken, Pernod Ricard.
Thanks to your support, we prepared rich starter packs and prizes for all runners!
Check out the photo gallery!
Join us on september 7, 2024.
The program is hosted by Aleksandra Numanović & Sanja Parmać
- 09:00 h – Beach volleyball tournament for volleyball clubs in Zagreb with the awarding of cups and medals.
- 16:30 h – Race for children
A short course (500m) adapted for children of all ages. Each child who participates receives a starting package and a medal as a sign of gratitude and support. - 17:00 h – Professional 5km race
Our ambassador will run for 24 hours and will start his race the day before. This will motivate all passers-by to join the event.
For the race, it is necessary to pay the entry fee on the portal and each runner will receive a starting package and a timer. This will help us to display the results transparently and award prizes according to the gender and age of the competitors.The entry fee will cover the costs of the organization, and any surplus will be donated to one of the guest associations at the event.
- 17:15 h – Race for retirees
15 minutes after the start of the professional race, a 500m race for retirees begins at the same start, who also receive a starting package and a medal. - 19:00 h – Concert by Croatian musicians
Bring your friends and family and enjoy music under the starry sky.
GOLDEN DONORS
SILVER DONORS
BRONZE DONORS
SPONSORS AND GUESTS
BE ONE OF
the Many for the Rare
SUPPORT THE INITIATIVE
to raise awareness about the importance of clinical trials for rare diseases and the development of new drugs and therapies for the purpose of cure.
MALO JEZERO
Jarun Zagreb
Saturday, 07.09.2024.
09:00 do 22:00 h
dobrotajelijek@proqlea.com