Rare diseases are
like hidden mysteries
waiting for their solutions
Zašto je zebra simbol rijetkih bolesti?
Simbol zebe potiče od poznatog medicinskog izraza: “When you hear hoofbeats, think of horses, not zebras” (Kada čuješ zvuk kopita, pomisli na konja, a ne na zebru). Ovaj izraz koristi se u medicini kako bi se podsjetilo liječnike da prvo razmatraju najčešće i najvjerojatnije dijagnoze – poput konja.
Međutim, rijetke bolesti su poput “zebri” – neobične, ne tako očite i često se zanemaruju jer su mnogo rjeđe.
Zebra, kao simbol rijetkih bolesti, predstavlja potrebu da se i rijetke, ali ozbiljne bolesti prepoznaju i dijagnosticiraju, te da se pruži podrška onima koji pate od njih. Kad mislimo na rijetke bolesti, zebra nas podsjeća da ne zaboravimo na ove nevidljive, ali stvarne izazove, te na važnost educiranja i podizanja svijesti među medicinskom zajednicom i širom javnosti.
Kindness is Medicine
Kindness is a medicine is an initiative aimed at raising awareness about the importance of clinical trials for rare diseases and the development of new drugs and therapies for the purpose of cure.
Initiative was launched by Proqlea d.o.o. It aims to increase the availability of the latest therapies for rare diseases in Croatia, reducing the need for patients to travel abroad.
It focuses on providing comprehensive support to families with difficult diagnoses, including psychological, social, and legal assistance, as well as education about rights and opportunities.
Kindness is Medicine
Kindness is a medicine is an initiative aimed at raising awareness about the importance of clinical trials for rare diseases and the development of new drugs and therapies for the purpose of cure.
Initiative was launched by Proqlea d.o.o. It aims to increase the availability of the latest therapies for rare diseases in Croatia, reducing the need for patients to travel abroad.
It focuses on providing comprehensive support to families with difficult diagnoses, including psychological, social, and legal assistance, as well as education about rights and opportunities.
How did it all start?
In Croatia, a country known for its solidarity and warmth, an initiative has been launched that brings hope to patients and their families. Kindness is Medicine was born from a simple but powerful idea: to facilitate access to modern medicines and therapies for those who need them most.
This vision was initiated by Josipa Ljubičić, inspired by the daily challenges faced by patients and their families. Instead of having to travel far to receive appropriate care, Josipa envisioned Croatia as a place where innovative therapies are available locally, in a caring community.
Kindness is Medicine...
The initiative has been focused on improving quality of life since day one – shortening wait times for medication, reducing pressure, and providing support at every step.
Kindness is Medicine quickly became a symbol of togetherness, bringing together experts, institutions, and individuals who believe in the power of change.
With Josipa’s leadership and the support of all who recognized the value of this goal, the initiative proves every day that a little kindness can truly change the world for the better.
Goals
Raising awareness about rare, incurable, and malignant diseases to help everyone better understand the challenges faced by those affected.
Emphasizing the importance of access to the latest therapies so that patients can receive treatment in Croatia without the need to travel abroad.
Providing comprehensive support to patients and their families facing difficult diagnoses, because everyone deserves support and understanding.
Activities
As part of the initiative, three panel discussions on related topics have been organized so far, bringing together leading experts in the fields of medicine and pharmacy. In addition to the panel discussions, the Many for the Rare event was organized.
EVENT
Many for the Rare
The first event was organized by Proqlea and the Croatian Association for Rare Diseases on September 7, 2024, to raise awareness about the importance of clinical trials and the challenges faced by people with rare diseases and their families.
Inspired by previous experiences and the need for stronger community connections, they designed the event in a way that goes beyond the boundaries of an ordinary gathering.
Many for the Rare brings a combination of sports, music, games, and noble activities – emphasizing the power of togetherness and selfless support.
The central goal of this event is to bring the importance of solidarity and understanding towards people with rare diseases closer to the general public, creating a space for connection, education and support.
News
Contact us
Join us at the next event and race, become a donor as part of the initiative, our associate or volunteer your time and join our ambassadors.
