Welcome to the
Kindness is medicine
initiative page!
An initiative to improve the quality of life for patients with
incurable, rare, and malignant diseases.
A disease without treatment = a life of uncertainty
More than 70% of known diseases lack effective therapy, leaving millions of people without the possibility of a cure. This harsh reality creates a series of challenges for patients and their families, who face uncertainty and limited treatment options on a daily basis.
In addition to physical symptoms, patients struggle with emotional burden, financial pressure due to healthcare costs, and often encounter a lack of understanding from their environment, which can lead to social isolation. Patients with rare diseases are particularly vulnerable, with over 7,000 such conditions, most of which have no approved therapy.
The lack of research further complicates the situation, making it difficult to establish accurate and timely diagnoses. Without adequate therapy, many are left to fight the disease on their own, while limited public awareness of these challenges further worsens their position.
This complex situation highlights the urgent need for greater investment in medical research and the development of new therapies. At the same time, better social support for patients and their families is essential to ease the burden of living with an incurable disease and improve quality of life despite health challenges.
Kindness is medicine: A comprehensive approach to incurable diseases
The Kindness is cure initiative addresses the challenges faced by patients with incurable diseases by improving access to innovative therapies and clinical trials in Croatia.
Launched in early 2024 by Proqlea Ltd., this initiative focuses on long-term changes in the healthcare system, connecting experts and patients, and advocating for better availability of new medications.
The initiative organizes panel discussions with healthcare professionals, researchers, and policymakers to develop systemic solutions.
As part of the initiative, the Many for the Rare event brings together the wider public to raise awareness about rare diseases, their challenges, and the importance of clinical trials. This event creates a space for community building through sports, music, and interactive activities, educates about rare diseases and their impact on patients and families, and encourages public support for research and improved healthcare policies.
By combining expert-led systemic changes with public engagement, Kindness is medicine creates a holistic approach to addressing rare, incurable, and malignant diseases.
This initiative aims to improve the quality of life for patients and their families, accelerate the development and approval of new therapies, foster a more inclusive society where no one is left to face their illness alone, and make medical innovations accessible to those who need them most.
Raising awareness
Raising awareness about rare, incurable, and malignant diseases – educating the broader public about the challenges faced by patients with rare diseases and the need for greater support.
Access to medications
Increasing access to the latest therapies and medications – advocating for faster access to innovative treatments that can improve the quality of life for patients by highlighting the critical role of clinical trials in the development of new therapies.
Support for patients
Providing comprehensive support to families facing difficult diagnoses – uniting the community through actions, events, and volunteer initiatives that support patients and their families.
Revolution in medicine: personalized therapies and AI open new horizons
Medical science is experiencing unprecedented progress, opening doors to new, personalized treatment approaches that are transforming patients’ lives. At the heart of this revolution are personalized medicine and artificial intelligence (AI), which together are shaping the future of healthcare.
Personalized medicine and AI are changing the game
Personalized medicine tailors therapies to each patient’s unique genetic profile and circumstances. Genetic profiling, pharmacogenomics, and biomarkers enable targeted therapies with fewer side effects. Simultaneously, AI is revolutionizing healthcare by enabling early disease detection through advanced analysis of medical images and data, predicting health risks using machine learning, and accelerating the development of new drugs by analyzing vast amounts of data.
These advancements are bringing revolutionary discoveries in the treatment of Alzheimer’s disease, rare disorders, cancer, diabetes, and autoimmune conditions. For patients with rare diseases, an AI-assisted personalized approach can mean the difference between life and death.
The crucial role of clinical trials
The path from laboratory to patient is not simple. Clinical trials play a crucial role in turning these promising innovations into real therapies:
- Confirmation of efficacy and safety: Clinical trials rigorously test new personalized therapies and AI-assisted treatments, ensuring their safety and effectiveness before widespread application.
- Early access to innovations: Patients who participate in clinical trials have early access to the latest, potentially life-saving therapies.
- Advancement of knowledge: Every clinical trial, even when it doesn’t result in the approval of a new drug, provides valuable insights that enhance our understanding of diseases and treatments.
- Adjustment of AI algorithms: Clinical trials are key to fine-tuning AI systems in real clinical conditions, improving their accuracy and reliability.
- Development of personalized protocols: Through clinical trials, scientists develop and refine protocols for personalized treatment, tailoring therapies to specific patient subgroups.
The synergy of personalized medicine, artificial intelligence, and rigorous clinical trials promises an era of medicine where each patient will receive optimal, individualized treatment. This revolution in healthcare brings us closer to a world where even the most challenging diseases become manageable, opening new horizons of hope for millions of people worldwide.
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Join us at the next event and race! Support our initiative by donating or volunteering. Join our ambassadors and make a positive change!